Lupus style society

The Full Story
Lupus Style Society is an organization at the intersection of fashion, philanthropy, and advocacy. It’s dedicated to raising awareness for lupus through fashion-forward events, creative collaborations, and curated moments that merge style with advocacy.
Founded by Caitlin Collins, the organization was created after her own lupus diagnosis. She struggled with feeling disempowered and isolated. Lupus is a chronic autoimmune disease where your body attacks its own tissue. It is often invisible, which leads to a feeling that those impacted don’t deserve to be noticed or seen.
Through collaborations with brands like Emilio Pucci and Balmain, Lupus Style Society creates experiences that feel considered and intentional. Each one is designed not just to raise funds, but to open the door to new conversations.
By merging the fashion world with lupus awareness, it’s building something that supports research while reminding people that life with lupus can still be full of brilliance. At its core, Lupus Style Society is about expanding the conversation around what it means to live with lupus. It creates space for people to feel seen without being defined solely by their diagnosis.